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Sharing Power With Community Members: Perspectives from Rochester-Area Funders, Nonprofits, and Parents

As foundations and nonprofits strive to center community members and look to them as experts, many struggle to engage with them in meaningful ways. The following videos share the perspectives of foundation staff, nonprofit staff, and parent leaders about why sharing power with community matters, the difference it makes to programs and strategies, and advice for funders, nonprofit leaders, and community members.

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Engaging people with lived experiences can strengthen nonprofits’ and foundations’ work and build community power, but it also can cause harm and deepen mistrust if not done well. As foundations and nonprofits strive to center community members and look to them as experts, many struggle to engage with them in meaningful ways.

In Rochester, New York, there is a growing movement to center parents’ knowledge and perspective in programs and services that support the health and well-being of children. For more than two decades, the National Parent Leadership Institute (NPLI) has worked with parents across the country to help them build skills and knowledge to advocate for their children and families and have a voice at decision-making tables.

When the Greater Rochester Health Foundation wanted to engage parents in updating its Healthy Futures grantmaking strategy, the foundation partnered with NPLI to bring parents into the work. At the same time, the foundation worked with NPLI to help a small group of nonprofit grantees learn how they could center parent voice in their organizations. Since those initial steps, the foundation has worked to center community voice in all areas of its work, and supported a growing number of grantees in doing the same.

The following videos share the perspectives of staff members of Greater Rochester Health Foundation, NPLI, and University of Rochester Medical Center (a grantee) as well as Rochester-area parents who have received training from NPLI and work in partnership with the foundation and University of Rochester. In these clips you will hear why sharing power with community matters, the difference it makes to programs and strategies, and advice for funders, nonprofit leaders, and community members.

What Does Parent Leadership Look Like in Action?

Carolyn Lee-Davis of NPLI and parent leader facilitators Toyin Anderson and Maria Dalmau describe NPLI’s approach and how it contributes to stronger organizations, stronger communities, and better solutions.

What is NPLI and a parent leader facilitator?

Why is empowering parents important?

What should organizations who want to engage parents consider?

What steps can parents take to become advocates for their children and communities?

How Can Nonprofits Authentically Partner with Parents? What Difference Does It Make?

Linda Alpert-Gillis, ph.D., of University of Rochester Medical Center and parents Toyin Anderson, Maria Dalmau, and Jason McDonald discuss how they have worked together to help the Pediatric Behavioral Health & Wellness department better meet the needs of patients and their families.

Why is it important for organizations to engage parents?

What qualities are important to be a parent advocate?

What are the barriers to authentic engagement?

How does authentic engagement impact nonprofit leaders and organizations?

How does authentic engagement impact parents and families?

How Can Funders Authentically Partner with Parents? What Difference Does It Make?

Parent leader Toyin Anderson and Greater Rochester Health Foundation staff Danette Campbell-Bell, Anita Black, and Matthew Kuhlenbeck reflect on lessons they’ve learned through partnering together and advice they’d offer funders interested in engaging community in similar ways.

What have you learned through the experience of creating a closer partnership between parents and the foundation?

How did you rethink processes and roles?

What impact have you seen result from authentically engaging parents?

What advice would you offer funders looking to engage community more authentically?

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